…….that SO many people don’t get.
Nick and I are watching TV last night when the phone rings.
Another family member chewing him out for ‘being distant’.
I’m beginning to think restraining order. Cause they are NOT getting the “He has cancer, is in lots of pain (even if he won’t tell you that), and is always TIRED” thing. When he doesn’t get to sit down and relax or nap during the day, it wipes him out.
How do I get these people to understand this??
Everyone wants to come visit Nick. No one gets an exclusive day with him. We have gotten to know a great number of people who understand he’s ill and sometimes he just doesn’t have the energy to ‘stand around outside and talk’ for hours on end. They pop in, talk a bit, then leave.
But there are others that expect him to BE THERE ready and full of energy when they decide to show up several hours past the time they SAID they’d be there. Then stand around talking for hours without a let up.
They don’t get what I have to go thru after they leave. The bandage changes, the pain meds, rubbing his back or legs so he feels a bit better, trying to find something he can eat because now he’s too tired to eat, so he loses more weight. There is an aftermath of other people’s ignorance.
And it’s just too sad for words.